The Dementia Bill of Rights

Should people with dementia have the same rights as the rest of us? A very serious and important question pointing again to the unfortunate way that society views people who are living with dementia.

The Dementia Bill of Rights

The other day, while goingthrough my emails, I found a discussion on LinkedIn under this heading:

“Should people with dementiahave the same rights as the rest of us?”

“This can’t be serious!” wasmy first thought. I was appalled by the question and incredulous as I readwhere the conversation went.

It started out with SusanMacauley, (those of you who read SCA blogs know Susan is one of my onlineheroes in dementia advocacy) posing the question as an introduction to TheDementia Bill of Rights, the ensuing posts that often are characteristic ofonline forums degenerated into semantics and arguments about who is right andwho is wrong. Whoa. What are we talking about here, anyway?

Newsflash, people! This is avery serious and important question that again shines a light on the unfortunateway that society views people who are living with dementia. The stigma, theassumptions, the lack of respect, and most of all, the inability of that personto be seen by their loved ones for who they are....and they are,indeed, someone. A person with aname, face, history, and yes, a disease.We get so tangled up in our own fear about dementia that we sometimes forgetabout the person sitting right in front of us, wanting and needing not muchmore than to be loved, touched, and valued.

This conversation made me wantto cry. Clashing opinions, challenging each other, and sorry to say, forgettingwhat the whole point of the Dementia Bill of Rights is about – that someone with dementia has the same rightsas anyone else.

Read this list of twelverights. Which ones do you think should be adjusted,removed, or ignored when a person’s cognition becomes compromised? How would itfeel if any of these rights were taken away from you?

The Best Friends™ DementiaBill of Rights (by David Troxel and Virginia Bell)

Every persondiagnosed with Alzheimer’s disease or other dementia deserves:

  • To be informed of one’s diagnosis.
  • To have appropriate, ongoing medical care.
  • To be treated as an adult, listened to, and afforded respect forone’s feelings and point of view.
  • To be with individuals who know one’s life story, includingcultural and spiritual traditions.
  • To experience meaningful engagement throughout the day.
  • To live in a safe and stimulating environment.
  • To be outdoors on a regular basis.
  • To be free from psychotropic medications whenever possible.
  • To have welcomed physical contact, including hugging, caressing,and handholding.
  • To be an advocate for oneself and others.
  • To be part of a local, global, or online community.
  • To have care partners well trained in dementia care.

If there is someonein your life who is living with dementia, ask yourself if their rights arebeing protected and honored. If they are not, there’s work to do.

If you have any questions or would like tobe in touch with a Senior Care Authority Advisor in your area call (888)854-3910 for a no-cost phone consultation. We have many resources to share withyou. You can also find a local advisor on our website at www.seniorcareauthority.com.

Marcy Baskin is an Elder Care Manager, andManaging Director of Senior Care Authority. She is also the author of AssistedLiving: Questions I Wish I Had Asked.

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The Dementia Bill of Rights
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